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A Message from Michele
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Re: Won’t Get Fooled Again [Re: kml] #2871758
11/11/19 04:22 PM
11/11/19 04:22 PM
Joined: Jan 2003
Posts: 15,046
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kml Offline OP
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kml  Offline OP
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Oh, and we don't know yet if the bleeding is stopped. The surgeon and the GI doc in the hospital both said they didn't think the carcinoid was the source of the bleeding because it was submucosal (below the surface of the intestine) and no evidence of ulceration or bleeding from it. They also didn't see anything on the capsule camera footage of his small intestine. His hematocrit was stable for a few days after surgery but then dropped a bit so they transfused him - that could have been from a little GI oozing from the site where they sewed his intestines back together, OR it could be his mystery source bleeding again, don't know. He'll have repeat blood tests Friday or so and we'll see if he's holding on to those red blood cells or not.

On a better note though - he's had to be on daytime oxygen since shortly after his radiation treatment in August (before was only at night). But yesterday he was off his oxygen for about an hour and a half and his oxygen level remained in the 90's - that's a big improvment over a month ago. Likely just his body calming down from the inflammation that the combo if chemo and radiation triggered. (He's been off chemo now for almost 10 weeks). Bronchoscopy is scheduled Friday to see what's going on in his lung right now and new chemo decisions will be made after that.

Re: Won’t Get Fooled Again [Re: kml] #2871773
11/11/19 06:27 PM
11/11/19 06:27 PM
Joined: Jun 2015
Posts: 2,918
Massachusetts
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bttrfly Offline
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I know you have so much on your plate right now. I'm sending you a {{{{{{{kml}}}}}}}


M 20+ T25+
BD 4/6/15
D Final 12/23/16


“Your task is not to seek for love, but merely to seek and find all the barriers within yourself that you have built against it.” - Rumi
Re: Won’t Get Fooled Again [Re: kml] #2871790
11/11/19 07:50 PM
11/11/19 07:50 PM
Joined: Jan 2003
Posts: 15,046
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kml Offline OP
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kml  Offline OP
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Joined: Jan 2003
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Back atcha {{{{{{{{buttrfly}}}}}}}}

Re: Won’t Get Fooled Again [Re: kml] #2872358
11/16/19 02:20 PM
11/16/19 02:20 PM
Joined: Jan 2003
Posts: 15,046
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kml Offline OP
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kml  Offline OP
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CMMs bronchoscopy yesterday went smoothly. We won’t know much until biopsy results are back next week. ( This was done to assess some PET scan changes, with a goal to direct our next chemo or radiation step.)

Meanwhile his daytime oxygen levels seem to have returned to normal after the big dump they took in August, which is a relief.

Re: Won’t Get Fooled Again [Re: kml] #2872710
Yesterday at 03:02 AM
Yesterday at 03:02 AM
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Posts: 15,046
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kml Offline OP
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kml  Offline OP
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Good news, the lung biopsy of the new area of concern was hegative for cancer, and the carcinoid tumor pathology did not look aggressive.

Had a nice dinner last night with a couple I knew when my oldest was a toddler. Sweet people, good hearted, salt of the earth. So glad they stopped to visit while they were in town.

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