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kml #2853825 06/20/19 04:57 PM
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Yes it's rotten. He's an only child I believe and his mother survived breast cancer a couple of years ago. Still, treatment odds aren't terrible - about a 50% 5 year survival and that's not counting on newer second line treatments like CAR-T therapies which can be quite miraculous, so I'm hoping for the best with him. He presented to the ER with nausea and chest pain and they found his white blood cell count was 50,000! (Normal 3,000- 10,000). They gave him his first dose of chemo the next day and two days later his white count was low at 1400, so at least it is very sensitive to Rituxan. Problem is, he's in Hawaii and would like to travel back to California so his mom could care for him but he shouldn't travel when he's immunocompromised with a low white blood count (breathing everybody's germs on the airplane) and he would have to time things carefully between treatments so there is no lag time between his last treatment there and first treatment here.

kml #2853830 06/20/19 05:34 PM
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Wow that's crazy.....I have a good friend of mine that just got diagnosed with colon cancer and he is 43 I think. His pet scan showed that it has not spread but he is concerned about the amount of his colon they will have to remove. I think he started his radiation pills last week.


Married 14, Together 17
M: 44, W: 43, D: 8, D: 6
M: 46, W: 45. D: 10. D: 8 (CUR)
Bomb Dropped: 5/28/2017
Separation Date: 6/17/2017
Divorce Filed: 2/7/2018
Divorce Final: 4/12/2018
kml #2853856 06/20/19 09:48 PM
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I know I've said it before but it bears repeating, CMM is beyond lucky to have you in his life. I know he may not act that way at times but putting myself in his shoes I'd be beyond grateful - in fact getting sick or dying alone is one of the few motivators I have left to even attempt to find someone. Another point to the positive, since I'm on a positive, glass half full bent here, is that it's looking more and more like CMM is going to beat the median survival rate. It's also sounding like he's doing it with a decent quality of life as well. If I were CMM I'd be very thankful for KML.


DonH
Midwest
Me 56
WAW-EXW 55
Met 11/95 / Married 5/00
Bomb 6/20/05 / She Filed on 6/2/06 / Divorced on 10/9/06
4 who'd qualify as GF since D & dated about 25 women since D
kml #2853859 06/20/19 10:48 PM
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^^^^what don said^^^^^

I’m really sorry about the results of his tests. I’m praying he beats it

kml #2853872 06/21/19 02:43 AM
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Thanks you guys. Yeah it makes you live in the moment and appreciate things. Tonight we're going to go see Ron White, the comedian. (They call me Tater Salad).

kml #2853880 06/21/19 10:00 AM
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If I were CMM I would be making sure you were sure that he is well aware of how lucky he is. You are awesome!


Me:57 H:57
S:25 S:22
M:24 T:26
BD:Aug 15
D:Sep 17
kml #2854024 06/22/19 12:55 AM
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Well we saw the oncologist today before chemo, plan is to add radiation treatments (he'll see the radiation oncologist Monday). Also his anemia continues to worsen so they will finally give him a transfusion on Monday.

kml #2854038 06/22/19 02:37 AM
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{{{{{{{ Ellie }}}}}}}


M 20+ T25+
S ~15.5 (BD)
BD 4/6/15
D 12/23/16

"Someone I loved once gave me
A box full of darkness.
It took me years to understand,
That this too, was a gift."
~ Mary Oliver
kml #2854110 06/23/19 12:48 AM
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CMM had a grossly bloody stool last night - just once, thank goodness, but worrisome since he had chemo yesterday and one of the potential side effects of this chemo is colitis. Normally they would treat that with steroids but he cannot take steroids (they cause him to have intractable hiccups, once lasting 6 months and losing 50 pounds). I'm afraid this may develop into a problem limiting his use of this chemo, and naturally, his oncologist is going out of town for the month. And of course it doesn't help his anemia any. Geez.

kml #2854129 06/23/19 11:54 AM
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oh no! hang in there xoxoxo


M 20+ T25+
S ~15.5 (BD)
BD 4/6/15
D 12/23/16

"Someone I loved once gave me
A box full of darkness.
It took me years to understand,
That this too, was a gift."
~ Mary Oliver
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