This is a quote from the email that I got today from Charlyne Care of Rejoice Ministries
A couple of people have asked me about the Covenant Trucks & where I'd heard about them
- - - - - "On this dreary morning, on my way to work, I was praying. I turned the corner and had to wait for a truck to back into a dock. As I ended the words to this part of my prayer, I looked up to find the truck was none other then a Covenant Transport truck. My God has not forgotten little me and the promise He made to show His Glory. (He will not forget little you either.)" (Illinois) (Read about Covennat transport trucks and standers by visiting - http://rejoiceministries.org/covenant_transport.php?page=2 - - - - -
I decided to copy this since there are many people who don't know what sarcoidosis is -
Sarcoidosis
A disease characterized by inflammation of the body's tissues, sarcoidosis is a multi-system disorder found in the lungs, skin, joints, eyes, central nervous system, heart, liver, kidneys, lymph glands, and other soft tissue organs. To the medical community, it is known as the "great masquerader" because it mimics other diseases and conditions making it difficult for doctors to diagnose and treat. Definite diagnosis is further hindered because it can dwell in the body in an asymptomatic state (no symptoms). It is further characterized as persistent inflammation in the form of lymphocytes (a type of overactive blood cell) which causes the formation of what is called "granulomas." The granulomas appear as lumps or nodules (singular or as clusters) in the body ranging in size from a pea to a fist. As sarcoidosis maneuvers throughout the body, the inflammed granulomas create scar tissue and block the function of vital organs which can cause permanent organ and tissue damage at the rate of 20 to 30 percent of all diagnosed cases. Sarcoidosis can present itself as shortness of breath, a dry cough irritating lingering cough, chest and back pain, weight loss, malaise, chronic fatigue, listlessness, fever, skin rashes, red bumps on the legs, arms, and shins, stiffness of the joints, swelling and arthritis of the ankles, wrists, hands and feet. Symptoms can sometimes appear and disappear spontaneously or remain active for a life time. Sarcoidosis manifests in the lungs 90% of the time and is often described solely as a lung disease. Irreversible lung damage occurs in 20% of cases. There are four stages of pulmonary sarcoidosis ranging from mild to advanced. Progression of pulmonary sarcoidosis is measured by the degree of lung involvement which may not affect the body in consecutive order. For reasons unknown, there is a higher occurrence of sarcoidosis in the African American community. African American women contract the disease at twice the rate of African American men and have more chronic and debilitating cases. The death rate for African Americans is 15-17 times higher than Whites. For 18% of African Americans diagnosed, 12% have a family member (mother, father, sister, brother) with the disease. It is estimated that over one million people have sarcoidosis in the United States. Sarcoidosis is known to be fatal for 5-10% of diagnosed cases. *Information from The Sarcoidosis Awareness Network's Web site
Byron's sarcoid is in the rare 2% that attacks his bones & only late last year did it finally attack his lungs - to what extent that it's attacked his lungs I'm unaware since he stopped bringing me to his doctor's appointments now that he's getting worse & his sarcoid doctor told him "You want to keep her she's good for you" since when I go to the doc appts I make notes & relate to all of the docs involved with his care what the others have said & the Rxs that have been prescribed as well telling the details of the drinking that Byron's done since the last visit since alcohol consumption does need to be taken into consideration for some of the Rxs - Byron was unaware that the docs pay attention to whats being said by me as to whats going on in our relationship & his actions since a couple of times that he's missed doc appts I've had to explain to them why it needed to be rescheduled & the docs which are in the same complex do relate to each other whats going on so that they can adjust the treatment plan as needed
Originally Posted By: MisingMyHubby
Originally Posted By: kml
MMH - Just some odd thoughts about H's sarcoidosis. Have been doing some reading that autoimmune thyroid disease is very prevalent, esp in men over 40 with sarcoid:
Ellie I think the link that you had originally put here you made in error since it was a link to an atty in colorado & had nothing to do with the satcoid discussion so I deleted it out
And since there are various autoimmune diseases where going on a gluten-free diet (the treatment for celiac disease) can cause a remission of the other autoimmune disease:
Seems to me, if his sarcoid is getting worse, he's got nothing to lose by trying a gluten-free diet. You can look at http://www.celiac.com for more info on the diet.
Ellie
Thanks for stopping by & posting the links on the sarcoidosis - I'll visit them & bookmark them for a later time when Byron's ready to deal with the information - right now his motto is so long as he can deny it then it must not be so - a bad ingrained habit that he's learned from MIL Mary
Actually Sarcoidosis is prevelant among young black men & women especially high in those populations who have been or are in the military (Byron was 1st diagnosed with sarcoid while he was serving in the Navy over in Iceland)
they have had no explanation as to where it's coming from since sarcoidosis is from unknown outside sources rather than being inherited as most diseases are but more people are starting to learn about the disease with the advent of the internet & as it's being found in more people around the world
those who are in their later years when they go into their history it's usually found that the people had been suffering from it back in their younger years but that they had been misdiagnosed by doctors who aren't familar with sarcoidosis & the fact that it imitates many other diseases depending upon those areas which are affected -
Byron is in the 2% group that when it's active it hits the bones & eyes while his lungs are showing clear so the lung tests that would alert most sarc patients never alerted for us -
in fact I'm the one who told the general practioner that what he was seeing on the xrays was most likely sarcoidosis rather than bone cancer which is usually a secondary cancer after cancer has already been in the body but typical doctor mentality is that patients don't know a thing doctor shashtri was insisting it was cancer & part of the hand would have to be amputated & of course he poo-pooed me for the research which I'd found on the internet even though it was from a college medical report that i found out the information about the stats on sarcoidosis & the fact that 2% of people get it in their bones & even saw xrays of what sarc in the bones looked like on the site
the orthopeadic & oncologist both said after the surgery that what ever it was it wasn't cancer that they were looking at so it most be "that disease that you were talking about 'cause it's not like anything which we've ever seen before a grey jelly like mass with what looks like sand in it"
You know the old saying about leading the horse to water but we can't make 'em drink... well that's been Byron since the sarcoidosis has come out of remission to stay since 01 when the above happened
the problem he's been in as much denial about just how bad he's actually making his own self - even after the docs have told him time & again that he's got to take his Rxs properly & live healthier... Byron was even threatened with being kicked out of the prestigious Remicade study which he was lucky enough to get into & so many sarc patients were wishing that they could've been a part of at the time
when Byron's ready to accept fully that he's got to eat & live healthy then I can once again start back onto his healthy diet, but alcohol for his body is one of the things which sets his sarcoidosis off on his body
I have no control over what he eats in terms of his diet while he continues to live with his mom so to worry about what he is or is not eatting & drinking I've given up on since all it does is give me stress over something which I have no control over in the 1st place, when Byron's home again is when it'll once again be my responsibility to make meals for him that will help Byron to regain his health but for now it's something which God will have to deal with
LimboLand can be liberating in that sense once a person comes to be comfortable there - a firm set of boundaries in place & as observer only Byron's got to handle his own messes & it's not my job to try to unravel the knots or pick up the pieces unless he invites me in to his domain of life it's only my job right now to be available to encourage him along on his road in life & to be supportive of him regardless of his choices -
it's Byron's job to learn from the mistakes that he's making & to deal with the issues that he has from the past it's my job to pray for Byron at this point & God's job to answer those prayers in His time & in His way... I've seen many prayers answered directly & others that I see are in process & in God's wisdom He knew that this time period although not what I wanted has been very much a time of growth as well as pruning for me just as much as it is for Byron
When this is over it'll be all to God's Glory not any human will be able to take credit for restoring this marriage just like the vision of the dry bones
well I need to get this post onto the board I started it last nite before I went to Intercessory Prayer meeting at church & left it all night & now need to get g-son & self out into the air & hopefully Daughter will be able to come join us in the park later on & bring g-son's bike out to the park so he can ride it around
The following is the link for the prayer room at Rejoice Minsitries with their times for chat tonight
^*^*^*^* Copied from email ^*^*^*^*^ The Rejoice Prayer Room will be open Saturday evening from 7:00 to 9:00 P.M. (EDT -05:00 GMT) to pray that scores of prodigal spouses will come to the Lord this weekend and Sunday on the Lord's Day - http://rejoiceministries.org/r.php?num=y3kty
^*^*^*^*^ End of copy ^*^^*^*^*^*^
The teleconference that Marriage Healing International has on saturdays was so very inspiring although we didn't have an official topic this morning
^*^*^*^*^ Start of Copy from Yahoo Group email reminder ^*^*^*^*
Reminder from: PowerofthePrayingWife-Restorations Yahoo! Group
Title: TeleConference = Marriage Healing Int'l
Date: Saturday April 14, 2007 Time: 11:00 am - 1:15 pm Repeats: This event repeats every week. Next reminder: The next reminder for this event will be sent in 23 hours, 2 minutes. Location: Our Home Phones Street: http://marriagehealing.org/irc Notes: Call-in number: 1-712-775-7000 Pin No. 893388# (must include pound key) Start Time: 8 a.m. PST, 9-MST, 10-CST, 11-EST End Time: when done Type of Conference: prayer, worship, teaching of the Word, Q&A
Get reminders on your mobile, Yahoo! Messenger, and email.
AS I look through my old threads & laugh over some of it like i did when i found the 2004 thread I'm sure that I'll find some of the other threads that I use to go to regularly as well as my 2005 thread so eventually I'll have all listed on one post & simply transfer it to each new thread as I go along
Heading to the docs office in a bit - might have to have minor surgery - say a prayer for me on that one
Has anyone ever heard from my oldtimer buddy Blair?
Re: 2004 the Roller Coaster Picks up SPEED! Blair Blair Member
Registered: 02/07/00 Posts: 1406 Loc: Chesterfield, MO, USA Queen, You've really got a lot of patience. Most women would have solved your problems with a divorce or a gun by now. The truth is you feel better about yourself for the effort. _________________________ Blair
Good to hear from you again. Sorry to read that B.'s health is so poorly. He is lucky you've decided to "be there" if and when he needs and asks for help. I hope your health turns out okay, I guess at this point you just need to keep taking care of yourself.
Thanks for the prayers Always Luckily for me the doc opted to not have to do the surgery & althou it's taken awhile with Rx the problem has eased up & appears to be going away
sorry it's taken me so long to reply haven't been on the board since my last post
I don't know why i don't get emails when someone posts to my htread - i've not figured out this new format - the old way i had my threads marked so that it as well as certain other threads i'd get an email when someone posted to them but now i've not figured how to do just select threads & not the entire forum
Good to hear from you again. Sorry to read that B.'s health is so poorly. He is lucky you've decided to "be there" if and when he needs and asks for help. I hope your health turns out okay, I guess at this point you just need to keep taking care of yourself. Yeah I'm working both my physical health as well as my spiritual & mental health
going on a mini-getaway to a seminar to see Neil Anderson the author of the books the Bondage Breaker & Victory Over the Darkness - the car isn't up to driving each way daily for the conferences so i'm going to stay in a local hotel which is just so nice for me to be able to have a nice hot shower - only have a tub here in the apartment while i'm there i'll be meeting in person a girl who i've met through the Marriage Healing International chat - so nice to be able to meet in person someone who understands what i'm going through & "why" as far as standing for my marriage
byron's been in sorta withdrawal mode for the moment & in some respects it's bothering me 'cause time is of the essesnce due to my dad's widow wants the pontiac moved & he's trying to avoid spending the money to go ahead & fix it - again with the control issue & quite frankly it's pissing me off but i've got no control over it but i may have to make things unpleasant for him by calling his parents a bunch this week to fuss at him about avoiding what needs to be done - if he can go each year into the 401k to take money out to BS with then he can take out money to get the cars properly fixed & enough with the bs lines that he's giving
The conference was great even though things didn't go quite as planned for me for the most part I benefitted by not ending up with the hotel room although the wagon suffered in the end
That saturday morning my daughter had to drive me in since the raditor hose came off with all of the mileage - byron had to leave work early to pick me up but he was being more than a bit of a brat about taking the time off considering he'd been told about the car problem early enough in the day for there not to be an upset for me & daughter - he finally arrived by 630p but i had a great time waiting for him to get there due to talking to a woman about the concept of Standing for your marriage & will be meeting up with the other girl from Marriage Healing International http://marriagehealing.org later on this month -
it's wonderful how God works even though the car falling apart didn't feel like a good thing it actually was on several sides Byron had to hear from the firestone mecanhic what i had already told him about the choice of mecanhics last yr & prior & the fact that yes i do know what i'm talking about when it comes to needing certain car repairs - it feels good to have someone else validate me to byron & not have to see him ctinge as i'm biting my tongue so i won't say "I told you so"
I started a MySpace page for Marriage Healing International after doing an update on my own page & asking if they were there to help get some free recognition so I was volunteered since the site owners are busy ministering that made me feel good to be able to support the misistry in that manner since I've not go tthe funds to be able to support even my local church very much & I definately support http://marriagehealing.org if anyone is on MySpace & either wants to add friends to me or to check out the MHI Space feel free to check both of them out http://myspace.com/marriagehealing
byron's sarcoid is really bothering him this weekend he came over here monday & was limping so bad that even daughter noticed it & she said that he was even having trouble standing for long while they were at the storage place God will not be mocked & Byron's now reapping what he's sown for the past 4 + yrs in the manner of physical pain for the neglect of his health in his time drinking & carausing rather than attending to his health & taking his meds properly - denial is getting a bit harder to face for him about his health condition for both himself as well as his mother mary who's been making excuses as to why his behavior has been acceptable & that I'm just overreactting & exaggerating his health problems all these years & that I don't know what I'm talking about
well let me get this off into cyberspace so that I'm able to make sure that g-son gets all settled in for the night
been having difficulties with my computers after both were intentionally messed up by a member here on the board who I had opened my home to, so I've been unable to make a posting before now to give the warning
Please keep in mind that most of the members here are upstanding people & the majority of those who I've met in person have turned into long time friends that are worthy of trust & love...
but there are people who come to places like this & play upon our emotions so that they'll be able to steal -
so do be careful before opening your home to a member here or any other online forum -
I learned the hard way that there are women out there who will use their children & your good will to get into your home & then steal from you
Thankfully God watched over me & my family & I only lost some material items, cash & my Rxs & have to totally rebuild the 2 computers (or rather Byron has to do it for me) but the reality is that had that woman been a differant type of thief it could've ended in physical harm to me & my g-son
I do not know what the woman is using for her name on the board now but it is on this board that I had met her through originally last year
my daughter & good friends have advised me that I should at least post a warning to the others here on the board because it's possible this woman may in fact be planning to do the same to someone else here on this board or another forum in the very near future since the cash which she took will only last for a month or 2 depending upon how much drinking she does
Now for the happier updates
Prodigal Son has decided that he's going to stay in the navy for a bit longer so he's not likely to be getting back statesside until sometime next year if he's able to transfer to the cali base - of course as a mother it does make me a bit sad not being able to see my baby on a more regular basis but right now he's not certain what he wants to do for a career & he likes the navy for now so he's making a good choice for the time being - I'll just keep praying for the safety of the ship & him during this time & hopefully nothing major will occur in the war dept that will end up calling the ships in the oriental waters
Rebell Daughter is excited she's moved into a new apartment Baby Genius is starting in a much better school than he was in last year & he's really enjoying school Rebell D has also signed up to start her RN classes online & is looking to get a position that will be beter for her timewise to get Baby Genius to & from school so far she's put in for an 11a to 7p position at a facility & we're praying for that to come through for her since it would be fulltime with benefits she does have an offer for a fulltime position 2nd shift but she'd prefer not to take that one she's also signed up for a temp agency which gives her the flexibility that she's needing right now
Byron's finally back on the road after being crashed into by a volunteer fireman on june 2nd Mary was allowing him to use her old car for the while but she told him that he wasn't allowed to come over here in her car in her attempt to keep us apart - while she was on vacation he invited me over there on 3 seperate occassions so that I could stay the night with him
Now that Byron's back on the road he's stopped by to work on these computers & trying to undo the damage that melissa had done in her attempt to keep me from getting online
well let me end this so that i can get to my mass of backlogged emails in my account
Things are slowly twirling on the roller coaster - seems that it's slowing down although not ready to come to a full stop on this MLC roller coaster
