Status report on CMM: two weeks into his radiation treatment and shortness of breath is becoming an issue. He really hasn't been bothered by this since he recovered from the collapsed lung in September. However his oxygen levels have been dropping for the last week and his oncologist canceled his chemo yesterday and ordered a stat CT scan to rule out blood clots. Radiation therapist thinks it is airway inflammation due to the radiation and has put him on a short course of oral steroids. This is the standard treatment but is nerve wracking since CMM has a history of intractable hiccups with steroid injections ( one episode lasted 6 months and he lost 50 lbs.). Fingers crossed that the oral steroids won't do the same and that his breathing will improve. I can see that this is making him feel his mortality, even though it's not a crisis yet - his blood oxygen levels are normal if he wears his oxygen, and he can go a couple of hours without it, but he wasn't dependent on it during the day before (only at night).
And his mystery iron deficiency anemia still doesn't appear to be resolved even after colonoscopy and cauterizatipn of some blood vessels.