Is he doing better today? My understanding is that the more grumpy and miserable a patient is, the better they are healing
On BD H52, W50 T27, M26 S21, D23 BD-9-Mar-16 D-15-Jan-18 Final-19-Apr-18 I am a storyteller. The story may do you no good. But a story is never for the listener. It is always for the one who tells
If that were true he’d be all healed! No, he’s still in pain and we’re concerned about a possible cellulitis. Watching an area of skin which may be just a little discolored from surgery versus the start of an infection.
Oh, and met with the oncologist yesterday who seemed to think the carcinoid was the cause of the GI bleeding - umm, no, both GI and the surgeon told us it wasn’t likely the cause, and they didn’t see anything else on the capsule camera footage either.
Poor CMM, still pretty uncomfortable.I marked him up with a sharpie on Friday and the discolored area is not spreading, so not likely cellulitis, but sure seems like he’s recovering very slowly.
Meanwhile I’m spending all weekend working on paperwork things that have gotten postponed with all the stuff happening in the last few weeks. Trying to get caught up. So many people need my attention for so many things right now.
I am sorry that CMM is still uncomfortable. I hope he feels better soon. I understand the need to play "catch up" after all that you've been through the last month or so, but please try to carve a little bit of time out for yourself.
Sit quietly, the answers will reveal themselves when you least expect them to. The past is gone, the present is a gift and you need to focus on today, allow the future to reveal itself when it is ready.
Did they not prescribe appropriate pain meds for him or is the pain just too much for oral meds? Or has the opioid prescribing over-correction reached CA patients as well? Really hope that’s not the case and whatever the reason he starts doing better soon.
Also do they believe they have the bleeding stopped or is that likely to continue as well?
DonH Midwest Me 56 WAW-EXW 55 Met 11/95 / Married 5/00 Bomb 6/20/05 / She Filed on 6/2/06 / Divorced on 10/9/06 4 who'd qualify as GF since D & dated about 25 women since D
He's been prescribed Norco but is refusing to take any. He doesn't want to get constipated but I think also has an unreasonable fear of opioids. Just taking plain tylenol.
Lol well no wonder he’s in pain. I’m mean it’s not funny but dude, there’s no reason to suffer. I am glad to hear at least it’s not a prescriber issue. Ive been hearing more and more about that and it’s a real legit issue. Obviously your son and I are living proof that opioids need real caution but the answer cannot be not giving them to anyone, which some docs seem to have defaulted to. Anyhow take some stool softener or heck one here and there when the pain is bad will not bind him up that fast. I’m sure you’ve already told him all,this. Tell him some stranger on the Internet told him as well, maybe that will help.
DonH Midwest Me 56 WAW-EXW 55 Met 11/95 / Married 5/00 Bomb 6/20/05 / She Filed on 6/2/06 / Divorced on 10/9/06 4 who'd qualify as GF since D & dated about 25 women since D
Lol yeah I told him he could take half a tab to take the edge off but no. It’s not like I would even let him take the. Whole prescription. Yeah there needs to be a middle ground. Fortunately his pain seems to have been a bit better today. He’s had some diarrhea today (hoping it’s not c diff! Loading him up with probiotics just in case) but it seems to have deflated his swollen tummy so I suspect it’s just his gut finally starting to work and clearing things out.
